H3Africa PHWG Data Collection Toolkit - Kidney Disease v2.0

<h2><strong>Description</strong></h2> <p>The Kidney Disease toolkit can be used to collect essential phenotypes associated with Kidney Disease-related research including personal History of Kidney Failure, Kidney Function Assay and Blood Cell Count. </p> <h2><strong>Administration</strong></h2> <p>The phenotype protocols contained in the toolkit range from Interviewer/Self-administered questionnaires to bioassay/lab-based assessments. The toolkit is applicable to human participants of all life stages, though some phenotype protocols are age-specific. For more information on administration of the toolkit, see the toolkit guideline.</p> <h2><strong>References</strong></h2> <p>The toolkit consists of both existing and novel data collection standards, and was based on several existing resources. These resources are listed below:</p> <ol> <li>Kumuthini J, van Woerden C, Mallett A, et al. Proposed minimum information guideline for kidney disease—research and clinical data reporting: a cross-sectional study, BMJ Open 2019;9:e029539. DOI: 10.1136/bmjopen-2019-029539</li> <li>Protocol - Personal History of Kidney Failure (<a href="http://www.phenxtoolkit.org/protocols/view/140601" target="_blank">www.phenxtoolkit.org/protocols/view/140601</a>)</li> <li>Protocol - Complete Blood Count (CBC) (<a href="http://www.phenxtoolkit.org/protocols/view/220501" target="_blank">www.phenxtoolkit.org/protocols/view/220501</a>)</li> <li>Sickle In Africa Core Data Elements (<a href="http://www.sickleinafrica.org/SIA_data_elements" target="_blank">www.sickleinafrica.org/SIA_data_elements</a>)</li> </ol>