H3Africa PHWG Data Collection Toolkit - Stroke v2.0
standard
posted on 2022-11-14, 14:18 authored by Judit Kumuthini, Melek Chaouch, Paul Olowoyo, Mayowa Owolabi, Moyinoluwalogo Faniyan, Lyndon ZassLyndon Zass, Katherine JohnstonKatherine Johnston, Taryn AllieDescription
The Stroke toolkit can be used to collect essential phenotypes associated with Stroke-related research, including: Stroke Characterisation; Stroke Verification; Primary Prevention and Secondary Prevention.
Administration
The phenotype protocols contained in the toolkit range from Interviewer/Self-administered questionnaires to clinically-administered assessments. The toolkit is specificaly applicable to adults (aged 18 and older). For more information on administration of the toolkit, see the toolkit guideline.
References
The toolkit consists of both existing and novel data collection standards, and was based on several existing resources. These resources are listed below:
- H3Africa SIREN Case Report Forms (CRFs)
Funding
H3ABioNet: a sustainable African Bioinformatics Network for H3Africa
National Human Genome Research Institute
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